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#invisibledisabilities

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Hey, folk who have #invisibledisabilities…. How do you explain to people that you don’t have the same body capabilities/endurance/needs as folk who don’t have the same challenges you do?

I’ve been thinking a lot lately about how to better explain to folk that my body is always operating at reduced capacity because my #donotdie medicine slows my heart rate and thus, while I’m fit and strong, my body tires more easily than it might otherwise do.

I can say “oh, I have #LQTS” but folk don’t really get the implications. I can say “remember that person who died from drinking an energy drink/super caffeinated beverage/too much coffee?” And they get that… but… It doesn’t translate to “I GET FUCKING TIRED EASILY AND SOMETIMES I JUST CAN’T FOR A FEW DAYS BECAUSE THE MEDICINE THE KEEOS ME FROM HAVING A CARDIAC ARREST ALSO GIVES ME SUPER LOW BLOOD PRESSURE AND LOW HEART RATE”

I’ve had some friendships end because people thought I was always bouncing because I didn’t want to hang but the reality was I was just exhausted… and some folk don’t get that I sometimes have to change plans because body…

I can’t be the only one

Thoughts?

I went looking online for contraindications to the new med I presumably have to take for the rest of my life, and found out that cannabis is on that list. I've been using cannabis to deal with chronic pain (no pun intended), and one of the side effects of the new med is widespread muscle pain and upset stomach. So I guess I'm just supposed to rawdog chronic pain now. Oof.

I wonder why I wasn't warned about this.

This is gonna suck.
#ChronicPain #Cannabis #InvisibleDisabilities

When I first started back at the gym three years ago, I made fantastic progress. I regained a lot of lost strength and mobility. But since I had COVID in October 2023 I have been in decline. First it was with my endurance. I went from being able to hold a >5 minute plank. A year after COVID, I struggled to hold one for 40 seconds.

Now I'm noticing a lot of old injuries have reappeared for no apparent reason. Though I haven't been doing running and jumping, my Achilles tendonopathy from several years ago has returned. My clicking hip syndrome has shown up on my good hip. The patella femoral syndrome of my youth is threatening a comeback.

And now there's something very wrong with my shoulder/neck/arm. I can no longer put on a sports bra without pain.

I find myself gripping the bannister when going down stairs. I have more frequent headaches.

I don't know if this is all related to long COVID, or if I'm just old.

I don't know what to put down for a fitness goal as I've failed every one of them for the past two years. Its disheartening, to say the least. I mourn the loss of my excellent strength and fitness.

At least I'm able to walk without exhausting myself. I'll take that as a win. There have been a few times in my life when I was too disabled to walk very much at all.
#disability #InvisibleDisabilities #ChronicPain #LongCovid #Covid #aging

Have you ever been out of spoons the minute you woke up?

Have you ever looked in the bathroom mirror first thing, only to see that your brain hung a sign across your forehead reading:

"OUT TO LUNCH UNTIL FURTHER NOTICE – KEEP OUT! THIS MEANS YOU!"

You know, the kind of morning where you're going to the bathroom and think to yourself, "If I went ahead and pissed on myself to get it over with, maybe the rest of the world won't piss on me today. Should I try to beat them to the punch?" Then, not actually meaning to, you actually do it.

It's the kind of morning when, before you even eat breakfast, your body feels like you already devoured a heaping bowl of Post-Kellogs' new Crunchy Vertebrae Cereal, with Mini Degenerative Disc Marshmallows, and a painful prize inside the box.

When you try to focus and plan your day, the only thing your brain can make out is the sound of Charlie Brown's parents. " Wha Wa Wa Wha...". Even holding the container of cat food to fill the bowl, all three cats flick their nose in the air with their paw, then turn and walk away. The outside cats moved across the street.

Then, your spouse/partner/loved one/roommate/coworker looks at you, realizing the kind of day you're having, and tells you they are there, if you need them. Even with all the love in your heart, your mouth still says "I know that you're here for me. Now go away please."

I'm calling this phenomenon Wednesday.

Redoing this for the new migrants:

I'm a Canadian dad/husband web developer with MS & ADHD who fundraises for SickKids Hospital (via ExtraLife) & other charity events as a video game loving Twitch streamer.

My huge collection (retro/modern) is getting put to good use!

Interests:
#gaming #Twitch
#ExtraLife #charity
#MusicProduction
#accessibility #a11y
#coding #dev
#MentalHealth

#InvisibleDisabilities : #MultipleSclerosis
#ADHD
generalized #anxiety

"Ridge Home for Mental Defectives"

[⚠️ CW: Historically, the treatment of people with invisible disabilities by institutions, policies and society, has often been inhumane. Examples cited in this piece, though not gory, may be unsettling to some.]

"Ridge Home for Mental Defectives – Are You a Mental Defective?":

Do I belong in a cage because I have invisible disabilities (IDs)? Should I be abused under the guise of “caretaking" that I do not require?  Should I be jailed, even if I did not commit a crime, soley because I live with #TBI, am #ActuallyAutistic and have other #InvisibleDisabilities. Do I belong locked away from sunshine and society? Am I mentally incompetent or a “Mental Defective”? That’s exactly what so many others with invisible disabilities were categorized as, and subjected to, in a part of Colorado's dark history.

“The Ridge State Home and Training Center for Mental Defectives ”, and some state laws that still existed in just the last decade, are only two examples of some of the barbaric practices.  Some of the articles linked below even demonstrate #stigmatude with use of words like “inmates" and the mental “R" slur.  People with downs syndrome are not the “R" word and those with invisible disabilities and mental health chalenges, are not defectictives.

Did you know, if you were having a mental health crisis, that you could be jailed in Colorado if there was no room in medical facilities?  That law was recently changed and funding from cannabis tax revenues was redirected for that purpose but, in some places, it still occurs.  Colorado law gives officials 28 days to get people with such experience proper treatment and placement but, in some cases people with invisible disabilities spent six months incarcerated without even an evaluation.  Is it any wonder that many do not want to ask for help?

So, what about the home for “Mental Defectives ”? My blood boils and I cringe everytime I hear that name… “Mental Defective", as if we are a broken toy or a factory second.  We are people with health issues just like someone with cancer or diabetes.  What if your loved one was locked away because they had #covid?

In 1909, Colorado chose 310 acres just west of Arvada to establish the “Ridge State Home and Training Center for Mental Defectives”.  The wording in the “Golden History” link below refers to residents as “inmates" and cites the first such “inmate” arrived in July, 1912. By 1936, the Ridge Home’s capacity of 300 was already at 260 people with IDs, many of which, were “exiled” and abandoned by their own families.

I will surely expend my generous character limit if I give all of my thoughts, so I will give just a few of the low-lights.

The 1937 newspaper headline in the image below claimed that “Everyone”s Happy at Ridge Home for Mental Defectives".  This propaganda is easily refuted by many accounts of actual occurrences at Colorado’s “prison” for people with ID and Mental Illnesses.

Aside from residents being forced to work on the “Ridge farm”, other abuses and atrocities were common.  One employee was charged with crimes of abuse against multiple residents after he bragged about his deplorable actions to friends.  The only means of release was by transfer to relative’s homes, to the so called “asylum” in Pueblo or death.

In the 1940s, the facility practiced “forced sterilization” of people with invisible disabilities, which some feel was a  attempt at a form of genocide.

In the 50s, stories of underfunding, overcrowding and abuse began to surface.  One administrator was quoted in a news article saying that many held captive in “Ridge” were “much too competent” to be in the home but, laws and family abandonment kept them there.

In the 1970s, fire safety issues, cracked walls and foundation caused part of the facility to be closed by order of the state. There were no proper fire exit routes, and not even a single fire escape.  In the 80s reports of neglect allegedly due to funding and staffing problems came to light.

As recently as the 1980s, “time outs” for those with behavioral issues resulted in some being put in cages.  One report cites a child was caged for nine month with only a bucket and a mattress. Others were said to be packed in wet sheets and ice for acting up.  Does that sound like treatment that will improve mental health, or torture that would make matters worse?

From Denver ABC 7:
“They were so mistreated. It just wasn’t right,” said Rhonda Sherill, who said she worked at Ridge in the 1980s. “Some of them would be put in what they call time out, which was basically a cage they would put him in until they weren’t combative.”

Eventually, this “section of hell" disguised as a medical facility was closed and sat abandon for years. Now, mostly demolished, “Ridge Home and Training Center for Mental Defectives” is the site of apartments and shops.

I personally would rather be homeless and not shop than to step one foot on those grounds. One can only imagine the horrors that these individuals must have lived but, one thing is apparent: Everyone was not happy at "Ridge Home for Mental Defectives."

Sadly, despite these changes, there is still much work to be done in bringing people living with invisible disabilities and mental illness “out of exile".

OutOfExile_IDR © 2022

denver7.com/news/local-news/me

history.denverlibrary.org/news

disabilitylawco.org/mental-ill

mentalhealthcolorado.org/color

asylumprojects.org/index.php?t

Golden History - 303-278-3557:  
goldenhistory.org/places/ridge

Pictures:
coloradoaerialphoto.com/pow.cg

(Updated) Introduction time:

I am a white man nearing his 50's (shhh), with an Irish heritage (Slainte), living as a coloniser on the stolen lands of the Wurundjeri Woi-wurrung people of the Kulin Nation. I am grateful for my position in this life.

I will uplift minority voices and women, over white cis-het straight men of a certain wealth and standing. Grumble somewhere else if this hurts your feelings.

I'm looking for upbeat people (Australian?), fellow rainbow community members (I'm trans masc, bi, queer), photographers (particularly landscape), artists, gallery managers to collaborate with, neurodivergent individuals etc...

All those things describe me, plus I love hiking and camping and [queer] film (oh my).

I use and appreciate content "wrappers"/warnings so I can pick and choose when to engage. I also use and appreciate alt text (either Pascal Case or camel Case) due to my cognitive disability.

I would freaking love to read your own introductions in the comments to this post.

I do not follow journalists, politicians, most "celebrities", or companies. I loathe AI "art", noisy invasive drones, and cyclists who peddle on the footpath and expect me to move out of their way.

I love the moderators on Aus.social 😍

#introduction #introductions #LGBTQIASB+ #transMasc #photographers #landscape #artists #neurodivergent #actuallyAutistic #invisibleDisabilities #disabledArtist #artistWithADisability #hiking #camping #film #Australia #altText #contentWarning