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#actuallyautistic

236 posts190 participants8 posts today

#actuallyautistic
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I spent eleven days hyper focused on that guitar and today I had a moment playing it, guitarists will tell you, I had to buy it. It taught me things, like you pick up a guitar and it feels so good suddenly you can play something you never could before, you find a guitar and it starts teaching you songs . . . didn’t teach me any songs yet, but the connection is like that.
.
and then I was finished, and my life and the world came back.
😩💜

I see a lot of the posts speaking against the shitty remarks by RFK about #ActuallyAutistic people mention they use the toilet unaided, work, date, etc...
That's great, that's true for many, and his generalizing is dangerous and abhorrent.

That said, if you don't achieve those goals of independancy, you are still worthy of life, care, safety, and joy. ❤️

Someone likely does fit RFK's description. They're still with us and still have value.

URGENT ! please help Dej! they are a #trans, #queer, #disabled #artist on the way to self-employment. they need #rent support while they work on covering back payments. they are at increased risk due to US #fascism.

$270/630 DUE APRIL 28

gofund.me/a49fe7ce

#genderqueer #ActuallyAutistic #transgender #LGBTQIA #MutualAid #MutualAidRequest #transMutualAid #transCrowdfund #punk #minnesota #BlackMutualAid #OriginalArt #art #MastoArt #furry #queerMutualAid #queerCrowdfund #furryArt #easter

@pathfinder @actuallyautistic

Well written, and as always, thank you for being a strong voice in the community.

I do want to take issue with one of your points though. You said "The image [RFK Jr.] portrayed of what it is like to be autistic is nowhere near the truth, it never has been.”

But what you said isn't true. There are autistics who can't toilet themselves independently. There are autistics who are non-verbal. There are autistics who never learned how to communicate with others ... or I should say, with whom the people around them never learned how to communicate.

It’s important to include those people in the discussion as well. They may never hold a job, either because they would never have been able to, or because the services offered to them believed that wasn't a course worth pursuing. They may never pay their taxes.

But they, and we — all of us — deserve respect. All of us have value.

@actuallyautistic

I think we've probably all seen the truly horrible things that RFK, aka Mr Worm-Brain, has been saying over the last week or so. There have certainly been enough excellent rebuttals and replies appearing on my TL to suggest it. There is nothing new, in a sense, in what he is saying. In many ways, it's the same tired arguments that AS has been coming out with for years, although perhaps a little bit more extreme and openly said. It is the fact that he, the US health secretary, is saying them and the implications that this could have, that has, perhaps, aroused us the most.

We are right to be outraged and upset. The image he portrayed of what it is like to be autistic is nowhere near the truth, it never has been. But, what has to be remembered is that for a long time it was far nearer the understood truth, than not. And that time, is not so far in the past. Many of us here are old enough to have lived through the timeline of autism, in the modern sense, of it really beginning to leave the institutions and the associations with extreme learning disabilities and becoming more widely recognised and understood. Implicit in this, in the medical model that has driven it, has always been the false divide between the functional and the non-functional. The useless eaters and the useful, as Asperger described it. It has given rise to the horrendous functioning labels and to the notions of Aspie superiority, that a small minority still cling to.

Most of us know, only too well, just how useless these notions are. That the reality of our experience is far more complex than that. Sure, there are those who, for a variety of reasons, struggle to live within the world, or at least to do so without a great deal of help. But that's true of many people. The homes and institutions that enable many, do not just cater to autistics. Equally, there are those who have no real problems. But for the vast majority of us, we just bounce around in between. Having our good days and our bad days, not struggling with something's as much as others, but never terribly consistently. The truth of autism has always been far more complex than some would like to believe.

How much of this Mr Worm-Brain understands, or even cares to, I don't know. He may just be stuck in his past, in his youth, when the image he portrayed was far more commonly the understood one. The same dire image that was dragged across our screens during the height of the vaccine's scandal, to show just how awful it was that they caused autism. The fear, that in a sense, still lives within much of society, that AS feeds on and, in many respects, encourages. The ignorance that can make autism seem frightening and almost unnatural and the apparent increase of it, a source of fear and concern.

This, in the classic way, is what RFK is really trying to tap into. The ignorance of many and the fear of the unknown. It is an all-time favourite of the despot's playbook. To what end, I don't know, and that is what has me worried. Because I seriously doubt it is for our benefit. But, in many ways, I really do hope that it comes simply from his ignorance, his willingness to see us as an easy and obvious way to crack open a door to somewhere else. Because, if so, he really isn't going to expect, or understand, the shit-storm that will come his way, when he manages to piss us all off.

#Autism
#ActuallyAutistic

Diary of an AuDHD Squirrel. Day 541 , Monday 21/04/2025

Monday started, for a change, on my terms. Slept thru until 07:30 the children next door obviously having used up all their energy yesterday.

It is a grey morning which matches my mood.

Somedays I feel very alone, one squirrel against the world kind of thing. Somedays being the ‘adult’ in the house day after day without respite drags at my soul.

08:45 Sophie mog is not herself this morning either, she is quite subdued & has been twitching while on Mrs S’s lap, I’m a little worried.

09:15 Sophie is sleeping soundly on the back of the settee now, see seems ok - maybe she was just chasing rabbits in her sleep before?

Really struggled to do anything this morning - Mrs S had gone upstairs to do some CPD work & I coudn’t get my brain around anything.

Made us some chicken sarnies for lunch then we had to watch a 3 part Agatha Christi adaptation that was like watching paint dry.

We’re having a KFC lookalike takeaway for tea & watching Black k Klansman.

17:55 Sophie update: she seems to have been fine for the rest of today so maybe just dreaming this morning.

That movie was hard hitting I can’t believe that we still have not learnt this lesson!!

Final Thoughts.

Starting to fall back on old coping strategies, this is not a good thing.
As my maths report often read: 5/10 must do better!

I have not heard anything from any member of my family so far this Easter, or in fact since the end of February. I know part of that is my fault, I have the hardest time getting on the phone, but I do wonder if they would miss me if I simply fell off the face of the planet.

Day by day until the last day.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

@actuallyautistic @autistics #ActuallyAutistic my eye doctor's optical shop told me their new lab won't/can’t fulfill my new prescription without a degrade in quality of the lenses…

…i have a higher than average prescription and need progressive lenses…

…and the optical tech strongly recommended against making this high ticket purchase after insurance (for just lenses since been using same frame for 5 years) since the degraded quality would be significant…

…not a happy camper

@Tarrenvane @joshsusser
It would be wonderful to reform the system to unify self-diagnosis and systematic diagnosis.

For those who self-diagnose but don't have an "official" diagnosis, why? Are the DSM's diagnostic criteria inadequate to identify our experiences, and how do we revise the criteria?

Certainly, financial and institutional access can be barriers to "official" diagnosis. How can we restructure the mental health care system to remove this barrier? (My thinking is socialized medicine as a basic human right).

Also, does the U.S. even really have a “mental health care system”? The fight to recognize mental health as a real aspect of **every** human life and integrate it into the social fabric is ongoing, and perhaps the true underlying issue.