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#LongCovid

244 posts173 participants18 posts today
Public *
datum (n=1)

"Post Covid Syndrome and Cognitive Dysfunction – Aetiology and Possible Treatment" - I think figure 1, the arrows going towards "cognitive dysfunction" should be bidirectional - but otherwise, yet another lay of the land paper implicitly but strongly suggesting that there is a pressing need for research focus on LC and ME/CFS treatments: cdn.fortunejournals.com/articl

#CovidIsNotOver#LongCOVID#SARSCoV2
Public
Anti. 🐘

"Those of us who want to take any extra steps to protect ourselves have been largely abandoned. Wearing masks in crowded spaces is rare, mocked, and in some cases even banned. Any kinds of commonsense precaution like air filtration have been shoved on the back burner or worse. The vulnerable are on their own—and there’s little reason to believe that our ranks won’t grow."

archive.md/MDXGt#selection-111

Still mourning what could have been, while everyone mocks me for my caution.

#Pandemic#LongCOVID
Public
Tuppenceworth

Frust total: nach 3Jahren Krankheit und 16 Monaten Wartezeit endlich ein Termin in der #PostCovid Ambulanz der Uniklinik. Ergebnis: eine der Ärztinnen weiß jetzt mehr über OffLabel Medikamente. Keine meiner Fragen zu Erfahrungen mit Reha, Therapieversuchen etc konnte beantwortet werden. Ich hab ja keine Wunder erwartet, aber schon ein bisschen Sachkenntnis.
#LongCovid #PostCovid

Public
Kristie

Labour are brutally gutting diability benefits while allowing many more to become disabled.

Research shows that roughly 1 in 10 people in UK have Long Covid, with many more to follow.

Each infection carries risk, not only for LC but many other sequelae.

Covid is an *ongoing* mass disabling event.

theguardian.com/commentisfree/

The Guardian · Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?By Frances Ryan
#Covid#Covid19#LongCovid
Public
tonAN

@ProtectTheKids Die Kinder und Jugendlichen, die jetzt unter vielfältigen #PostCovid oder #LongCovid leiden, werden nach wie vor verschwiegen, um das Märchen "Covid ist für Kinder harmlos" nicht zu stören.

Die Pandemie hat sicher viele Kinder in vielen Dimensionen komplex betroffen. Alles auf die kurze Zeit des remote Lernens zu reduzieren ist einfach lächerlich .

Bequeme Lügen haben seither gute Konjunktur. Nicht nur bei der Covidaufarbeitung.

Public
Kirsty

#Covid19 hospital acquired infections still a major problem, yet precautions are not protecting vulnerable patients.

"We seem to ignore the people at the centre of this. We're dealing with people losing their lives. [The proposal] might benefit the system, but what harm are we causing to patients?"

rnz.co.nz/news/what-you-need-t

#Covid19NZ #CovidIsNotOver #MaskUp #LongCovid #ChronicIllness
@auscovid19

RNZ · Too many catching Covid-19 in hospital, experts say - but precautions being rolled backBy Katie Kenny
Public
Anna

Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. There are no places to go for severely disabled.
I need GOOD PEOPLE TO HELP ME.
I’ve been screaming for years my health & situation keep getting worse.
Help me😭
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME

@mecfs
@severeme
@longcovid
@RAHU
@chronicpain
@neisvoid
@pwme

Public
Anna

Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. No places to go for severely disabled.
Need GOOD PEOPLE TO HELP ME.
Screaming for years my health & situation terrible
Help me😭
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME

@mecfs
@severeme
@longcovid
@chronicpain
@neisvoid
@pwme

Public
Broadwaybabyto

Mask bans already exist in certain States and counties.

Vance spearheaded a federal ban on mask mandates.

Organizing to codify the right to wear medical masks and respirators is (sadly) needed.

Masking is community care and resistance.

Illinois attempting to codify right to mask into law:

pmefa.org/

pmefa.orgHB3853: The Protective Medical Equipment Freedom ActThe website of the Protective Medical Equipment Freedom Act, a landmark Illinois bill which establishes the right to wear masks and other protective equipment.
#uspoli#nomaskbans#ableism
Public
Tom Kindlon

Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative

jmir.org/2025/1/e59217/

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots

Journal of Medical Internet Research Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative — Hannah L Mandel "The initial focus among clinicians on respiratory symptoms and widespread lack of knowledge around what were initially considered to be “atypical” presentations, such as postexertional malaise, ME/CFS, POTS, and dysautonomia, also contribute to missingness of relevant diagnoses within the EHR"
ALT
Public
ahimsa

@plaguepoems
About 5 years ago (see image below, saved this tweet before I deleted my account) I asked whether COVID would cause more ME/CFS cases and whether anyone was going to study this issue. And I was not the only person asking this!

We now have a study showing that this is indeed what happens 😢

Among participants infected with SARS-CoV-2 the incidence of ME/CFS is 15 times higher than pre-pandemic rates.

batemanhornecenter.org/covid-1

Tweet from "ahimsa is on Mastodon now" (@ahimsa_pdx) "We know that many (most?) cases of ME/CFS are post viral. Is anyone going to study what happens after COVID-19 infection - do some patients end up with ME/CFS? Seems like a good research opportunity." 9:54 PM - March 8, 2020
ALT
#COVID19#MEcfs#LongCovid
Public
Bass #AlleBurgers #EcoHumanist

@alleburgers @Med58ll

The law of regression to the tail: How to survive Covid-19(#LongCovid),#BirdFlu #H5N1, the #ClimateCrisis, and other #Disasters

Prof. #BentFlyvbjerg: "Instead, decision makers will want to do two things: (a) "cut the tail," to reduce risk by mitigation, and (b) practice the precautionary principle, i.e., avoid tail risk altogether by taking a cautious approach."

➡️pmc.ncbi.nlm.nih.gov/articles/

PubMed Central (PMC)The law of regression to the tail: How to survive Covid-19, the climate crisis, and other disastersRegression to the mean is nice and reliable. Regression to the tail is reliably scary. We live in the age of regression to the tail. It is only a matter of time until a pandemic worse than covid-19 will hit us, and climate more extreme than any we ...
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