Utterly frustrated: after waiting 16 months (having been ill for 3 years) finally had an appointment at a #PostCovid clinic. Result: one of the doctors now knows more about possible off lable medication. New insights for me: zero. I did not expect much, but was still underwhelmed by the lack of information.
#LongCovid #PostCovid
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#LongCovid
242 posts171 participants16 posts today
Frust total: nach 3Jahren Krankheit und 16 Monaten Wartezeit endlich ein Termin in der #PostCovid Ambulanz der Uniklinik. Ergebnis: eine der Ärztinnen weiß jetzt mehr über OffLabel Medikamente. Keine meiner Fragen zu Erfahrungen mit Reha, Therapieversuchen etc konnte beantwortet werden. Ich hab ja keine Wunder erwartet, aber schon ein bisschen Sachkenntnis.
#LongCovid #PostCovid
Heads up UK - Media is starting to connect the dots 
“One in Ten People in UK May Suffer From #LongCovid”
FYI- More that 10% suffer, jabs don’t prevent it, but wearing an #N95 / FFP2 does https://t.co/Dfe7TH62FL
2025-March-14 Friday
701 Americans Died Last Week From COVID 19
1,223,304 Americans Dead From COVID 19 In Total
Labour are brutally gutting diability benefits while allowing many more to become disabled.
Research shows that roughly 1 in 10 people in UK have Long Covid, with many more to follow.
Each infection carries risk, not only for LC but many other sequelae.
Covid is an *ongoing* mass disabling event.
The Guardian · Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?
@ProtectTheKids Die Kinder und Jugendlichen, die jetzt unter vielfältigen #PostCovid oder #LongCovid leiden, werden nach wie vor verschwiegen, um das Märchen "Covid ist für Kinder harmlos" nicht zu stören.
Die Pandemie hat sicher viele Kinder in vielen Dimensionen komplex betroffen. Alles auf die kurze Zeit des remote Lernens zu reduzieren ist einfach lächerlich .
Bequeme Lügen haben seither gute Konjunktur. Nicht nur bei der Covidaufarbeitung.
Replied to demian 
No tenemos que consentirlo.
Podemos elegir el cuidado colectivo.
Podemos elegir el amor como un acto de resistencia contra el peso aplastante del capitalismo.
Nunca es demasiado tarde para volver a usar mascarilla.
#COVIDconscious #MaskUp #WearAMask #CovidRealist #CovidIsAirbone
Kennt jemand Arzt oder Ärztin, der / die OM #Saarland bei einer jugendlichen Person #LongCovid / #ChronicFatigue diagnostizieren bzw. ausschließen kann?
#Covid19 hospital acquired infections still a major problem, yet precautions are not protecting vulnerable patients.
"We seem to ignore the people at the centre of this. We're dealing with people losing their lives. [The proposal] might benefit the system, but what harm are we causing to patients?"
#Covid19NZ #CovidIsNotOver #MaskUp #LongCovid #ChronicIllness
@auscovid19
RNZ · Too many catching Covid-19 in hospital, experts say - but precautions being rolled back
Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. There are no places to go for severely disabled.
I need GOOD PEOPLE TO HELP ME.
I’ve been screaming for years my health & situation keep getting worse.
Help me
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME
@mecfs
@severeme
@longcovid
@RAHU
@chronicpain
@neisvoid
@pwme
Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. No places to go for severely disabled.
Need GOOD PEOPLE TO HELP ME.
Screaming for years my health & situation terrible
Help me
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME
Mask bans already exist in certain States and counties.
Vance spearheaded a federal ban on mask mandates.
Organizing to codify the right to wear medical masks and respirators is (sadly) needed.
Masking is community care and resistance.
Illinois attempting to codify right to mask into law:
pmefa.orgHB3853: The Protective Medical Equipment Freedom ActThe website of the Protective Medical Equipment Freedom Act, a landmark Illinois bill which establishes the right to wear masks and other protective equipment.
Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative
https://www.jmir.org/2025/1/e59217/
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots
ALT
Unveiling the Immune Landscape of COVID-19 and prolonged Long-COVID through Single-Cell RNA Sequencing
https://www.biorxiv.org/content/10.1101/2025.03.05.641671v1
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
ALT
@plaguepoems
About 5 years ago (see image below, saved this tweet before I deleted my account) I asked whether COVID would cause more ME/CFS cases and whether anyone was going to study this issue. And I was not the only person asking this!
We now have a study showing that this is indeed what happens 
Among participants infected with SARS-CoV-2 the incidence of ME/CFS is 15 times higher than pre-pandemic rates.
ALT
The law of regression to the tail: How to survive Covid-19(#LongCovid),#BirdFlu #H5N1, the #ClimateCrisis, and other #Disasters
Prof. #BentFlyvbjerg: "Instead, decision makers will want to do two things: (a) "cut the tail," to reduce risk by mitigation, and (b) practice the precautionary principle, i.e., avoid tail risk altogether by taking a cautious approach."
PubMed Central (PMC)The law of regression to the tail: How to survive Covid-19, the climate crisis, and other disastersRegression to the mean is nice and reliable. Regression to the tail is reliably scary. We live in the age of regression to the tail. It is only a matter of time until a pandemic worse than covid-19 will hit us, and climate more extreme than any we ...
#tonvanhaperen op X schreef:
Te makkelijk. Wel het hele verhaal, graag. Er zijn leraren overleden aan corona, het hoogste percentage #LongCovid? Leraren! Iedereen was voor open scholen, maar maatregelen ter bescherming van leraren, lastig. En dan krijg je dit. Zie
NRCOpinie | Middelbare scholen maximaal open is beter, maar met strikte afsprakenOnderwijsblog: Ja, er is een besmettingsrisico op scholen, maar met sneltesten en sturing op gedrag kan de schooldeur weer open, betoogt Ton van Haperen.
Study suggests that three vaccine doses cut risk of Long Covid by over 60%.
#COVID #LongCovid
https://www.cidrap.umn.edu/covid-19/3-vaccine-doses-cut-long-covid-risk-over-60-analysis-suggests
CIDRAP3 vaccine doses cut long-COVID risk by over 60%, analysis suggests
5 years later - https://philanthropy2173.ghost.io/five-years-later/ #longcovid #change
Philanthropy2173 · Five years later...Pandemics change worlds in the short term, as many of you act like it's over, and in the long term. Where world changes are concerned, we are still in the opening chapters of the history and effects of the Covid pandemic.
Covid is back in the news nowadays, not because