ContraindiKate<p>apropos this post by <span class="h-card" translate="no"><a href="https://zeroes.ca/@datum" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>datum</span></a></span> <br><a href="https://zeroes.ca/@datum/113933317052330114" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">zeroes.ca/@datum/1139333170523</span><span class="invisible">30114</span></a></p><p>I’ve been thinking for awhile that someone with the necessary spoons and skills should make a website called Chorus Of Cassandras. It could be a library of the amazing resources being created by people with post-infectious diseases like Long COVID and ME/CFS. </p><p>We are living through a pandemic of disablement due to the ongoing COVID-19 pandemic. But the increasing public awareness of ME/CFS and Long COVID caused by the huge numbers of people now living with these diseases is also leading to a renaissance of Chronically Ill work. </p><p>There is so much amazing, useful work to collect and document and share: articles, books, blogs, research projects, fundraising projects, music, art collectives, film festivals, cookbooks, comics, photography…. </p><p>This collection of work essentially fills the hole created by failures of official public health departments. It contains valuable information for a society that will continue to be systematically weakened by post-infectious diseases. </p><p>These creators are explaining what these diseases are and how they can be managed. They are also showing how to live in bodies that do not function as they used to. These people know how to create the informal systems necessary to stay alive in bodies that do not function within the old status quo.</p><p>I have learned so much from these creators about how to live my chronically ill life. They are our illders. We need their wisdom. </p><p>Someone with energy and IT skills should be archiving this wisdom. We need a Compendium of the Chorus of Cassandras. An exhaustive list of the work of the exhausted. </p><p><a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCOVID</span></a> <a href="https://zeroes.ca/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://zeroes.ca/tags/CripWisdom" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CripWisdom</span></a> <a href="https://zeroes.ca/tags/DisabilityJustice" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabilityJustice</span></a> <a href="https://zeroes.ca/tags/WebDevelopers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WebDevelopers</span></a> <a href="https://zeroes.ca/tags/Art" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Art</span></a> <a href="https://zeroes.ca/tags/Library" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Library</span></a> <a href="https://zeroes.ca/tags/Librarians" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Librarians</span></a> <a href="https://zeroes.ca/tags/WebDesign" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WebDesign</span></a> <a href="https://zeroes.ca/tags/DigitalArchive" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DigitalArchive</span></a> <a href="https://zeroes.ca/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PublicHealth</span></a></p>