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#actuallydisabled

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Likely Jan Lukas<p>I'm absolutely no expert on terminology such as "internalised ableism," so it IS possible that's what I went through. </p><p>Then again, I am generally the last to recognise something in myself that others have/are, eg: being <a href="https://mstdn.ca/tags/trans" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>trans</span></a>, so simply not noticing I was <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> is pretty on-brand for me. 🤔😂</p><p>4/x</p>
Likely Jan Lukas<p>I don't know if the elder self-identifies as <a href="https://mstdn.ca/tags/disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabled</span></a>, despite clearly being no longer as-abled as times' past.</p><p>AFAIK this is pretty common -- heck, even thiugh I've been <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> since my pre-teen years, I never really *recognised* or *acknowledged* it until things got bad enough that I needed to start using crutches or canes. </p><p>This, despite literally requring accomodations to use typewriters for exams every term! 🙄😂</p><p>It's really easy to avoid seeing ourselves this way.</p><p>3/x</p>
Likely Jan Lukas<p>As I've mentioned practically-endlessly, I am <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> and have a number of <a href="https://mstdn.ca/tags/ChronicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicHealth</span></a> conditions to manage as well. I have been doing so for over 40 years, including surviving complex stuff like <a href="https://mstdn.ca/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> and <a href="https://mstdn.ca/tags/BreastCancer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BreastCancer</span></a>.</p><p>Critical to my ongoing survival is to ensure I do my best to protect *me* during an ongoing pandemic where <a href="https://mstdn.ca/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PublicHealth</span></a> has completely abdicated their purpose to protect us all.</p><p><a href="https://mstdn.ca/tags/So" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>So</span></a> I wear an <a href="https://mstdn.ca/tags/ElastomericMask" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ElastomericMask</span></a>, everywhere.</p><p>2/x</p>
Likely Jan Lukas<p>Back in February 2024, I shared some <a href="https://mstdn.ca/tags/MaskHacking" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MaskHacking</span></a> tips I'd figured out for personal use.</p><p><a href="https://mstdn.ca/@likelyjanlukas/112006112174878006" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">mstdn.ca/@likelyjanlukas/11200</span><span class="invisible">6112174878006</span></a></p><p>Now it's time to update with some handy info for <a href="https://mstdn.ca/tags/healthcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>healthcare</span></a> situations such as, <a href="https://mstdn.ca/tags/hospitals" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>hospitals</span></a>, specifically <a href="https://mstdn.ca/tags/imaging" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>imaging</span></a> and <a href="https://mstdn.ca/tags/dx" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dx</span></a>! 😀</p><p>1/x</p><p><a href="https://mstdn.ca/tags/MaskUp" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MaskUp</span></a><br><a href="https://mstdn.ca/tags/MaskHack" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MaskHack</span></a> <br><a href="https://mstdn.ca/tags/Respirator" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Respirator</span></a> <br><a href="https://mstdn.ca/tags/AirQuality" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AirQuality</span></a> <br><a href="https://mstdn.ca/tags/AirFiltration" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AirFiltration</span></a><br><a href="https://mstdn.ca/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CovidIsNotOver</span></a><br><a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a><br><a href="https://mstdn.ca/tags/PPE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PPE</span></a></p>
Likely Jan Lukas<p>I've been <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> most of my life but was able to be gainfully employed as an adult until a then-public school board fired me for being <a href="https://mstdn.ca/tags/trans" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>trans</span></a>.</p><p>Challenging this school board for it's illegal actions through the <a href="https://mstdn.ca/tags/HumanRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HumanRights</span></a> commission coincided with a sudden and precipitous drop-off of calls from any other school board I worked with. A complete coincidence, no doubt. 🙄</p><p>4/x</p>
Likely Jan Lukas<p>A couple weeks' back, my pharmacy called to inform me that they were unable to process my next Rx refills via my <a href="https://mstdn.ca/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mstdn.ca/tags/insurance" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>insurance</span></a>, <a href="https://mstdn.ca/tags/AISH" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AISH</span></a>, aka 'Assured Income for the Severely Handicapped', which is <a href="https://mstdn.ca/tags/Alberta" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alberta</span></a>'s support programme for <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> people.</p><p>2/x</p>
Likely Jan Lukas<p>But in all seriousness, being <a href="https://mstdn.ca/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> and <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> means that dealing with a constant flood of over-complicated <a href="https://mstdn.ca/tags/interfaces" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>interfaces</span></a> can be draining beyond my capacity for any given day.</p><p>And it feels pretty darned frustrating to be thwarted from doing laundry just because one doesn't have advanced degrees in graph theory or <a href="https://mstdn.ca/tags/cryptography" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cryptography</span></a> and isn't up to dealing with all this just for some fresh clothes.</p><p>5/x</p>
Likely Jan Lukas<p>Again I remind you that I am <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> and manage multiple <a href="https://mstdn.ca/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllnesses</span></a>. </p><p>I have taken large amounts of many medications for most of my life, and many of these mess with my body's moisture. My tissues are dry from the inside out, ugh.</p><p>I've even started losing teeth due to this dryness, despite nearly-obsessive levels of dental hygiene on my part! 😬</p><p>So it's possible I feel dehydrated faster than many/most folks would in the same <a href="https://mstdn.ca/tags/ElastomericRespirator" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ElastomericRespirator</span></a>.</p><p>12/x</p>
Likely Jan Lukas<p>I tried a couple of other <a href="https://mstdn.ca/tags/ElastomericRespirators" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ElastomericRespirators</span></a> before I settled on this one. The other ones fit generally okay but weren't great with my glasses, and I had to remove them completely for eating or drinking.</p><p>While I have been mostly alone throughout the pandemic, physical limitations due to being <a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a> means I can't necessarily manage doffing and donning a zillion times if I am out.</p><p>5/x</p>
Likely Jan Lukas<p>I have probably mentioned before how much I love my 3M 6500 QL series half-face respirator. </p><p>Let me share a couple of important hacks with you.</p><p>1/x</p><p><a href="https://mstdn.ca/tags/MaskUp" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MaskUp</span></a><br><a href="https://mstdn.ca/tags/MaskHack" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MaskHack</span></a><br><a href="https://mstdn.ca/tags/Respirator" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Respirator</span></a><br><a href="https://mstdn.ca/tags/AirQuality" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AirQuality</span></a><br><a href="https://mstdn.ca/tags/AirFiltration" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AirFiltration</span></a><br><a href="https://mstdn.ca/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CovidIsNotOver</span></a><br><a href="https://mstdn.ca/tags/ActuallyDisabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyDisabled</span></a><br><a href="https://mstdn.ca/tags/PPE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PPE</span></a></p>