Hello! I'm a disabled author sharing my #poetry #chapbook! I have #MCAS and for me, it caused significant neuropsychiatric symptoms before treatment so I documented my normal in poetry.

From a period of misdiagnosis and desperation,
Allergic to Sanity turns struggles into stanzas to document the everyday calamity of an unpredictable bodymind. When mast cell activation causes madness, Allergic to Sanity pulls skeletons out of the closet to examine the dislocations of reality.

https://bottlecap.press/products/allergic

Fuck my #allergies fuck #pollen
I love spring but damn even on multiple #antihistamine medications and doubling the dosage (on my doctor's advice) I still feel like shit

Hopefully by the end of may I'll feel like a human being again instead of a ball of pain and snot.
#MCAS #autoimmunedisease

Ich weiß, dass nahezu alle Menschen da draußen ihr "normales" Leben wieder aufgenommen haben. Dass ihr da draußen lacht, weint, was trinkt, euch verabredet, bastelt, lötet, oder einfach Spaß habt.

Ich fühl mich wirklich gefangen in meiner Wohnung, die ich nur gegen einen schlimmen Preis (... starke Schmerzen & Symptome) verlassen kann und gefangen in meinem Körper. An meinem Leben ist nichts mehr wie früher.

Damit hab ich sehr zu kämpfen.

"If you have a #histamine intolerance, spinach, tomatoes, aged cheeses, #processed meat, and beer may cause an allergic reaction. Some foods are naturally high in histamines. Others don’t have a lot of histamine but trigger your white blood cells to make it.

A good rule of thumb is that foods that are fermented, aged, or overly processed likely contain more histamine than fresh #food.

https://www.webmd.com/diet/foods-high-in-histamine … #mcas

Hab aktuell 3 Podcast-Hörempfehlungen zum Thema #MCAS und #MECFS

Nina von der Mastzellenhilfe beim Fasy.nation Podcast https://www.mastzellenhilfe.de/mcas-und-me-cfs-literatur/ & https://www.fasynation.de/der-podcast-zum-chronischen-erschoepfungssyndrom-me-cfs/

Die Degranulate ME Folge vom Voices on ME/CFS Podcast der Meduni Wien https://www.meduniwien.ac.at/web/forschung/projekte/computer-based-clustering-of-chronic-fatigue-syndrome-patients/podcast/

My life has improved since I realised that the non-binding socks they recommend for diabetics are also great to avoid pressure triggered hives on my legs and feet. #MCAS

https://www.theguardian.com/lifeandstyle/2025/mar/21/experience-im-allergic-to-nearly-everything My immune system started identifying all food as allergens. Doctors thought it could be stress-related or due to an ex-boyfriend who wasn’t careful about not eating nuts before kissing me.

I was hospitalised for a couple of weeks, and doctors ran trials to find food that I wasn’t allergic to. The only things were oats, eggs, bacon and water. For the next four or five months, that’s all I could eat – it was devastating. #Health #MCAS

https://www.theguardian.com/lifeandstyle/2025/mar/21/experience-im-allergic-to-nearly-everything I’ve been diagnosed with mast cell activation syndrome (MCAS). It means your immune system is triggered too frequently and can cause anaphylaxis, so you can become allergic to a huge range of things. It’s a rare, incurable condition. #MCAS #Health

It's no longer my birthday, but I think my blog post on #MCAS #MECFS #LongCOVID is still worth reading:

https://www.johannesjaeger.eu/blog/living-with-fatigue-and-a-society-that-does-not-care

New #introduction post!

I'm Alicia and I'm a fibre artist (#dyeing #handspinning #felting #needlefelting #weaving #crochet #embroidery #upcycling #sewing) with interests in #mandala #art #psychedelicart #sacredgeometry #neurographicart and #watercolors.

My family and I run a business called @Fibre2Fabric where we dye all sorts of exotic #fibre #yarn, and #fabric.

I live in the country with my partner and our 6 #cats, 3 #dogs, #snake and #crestedgecko where I enjoy my many interests. (#gardening #plants #herbalism #fungi #music #ukulele #piano #dancing #flowart #reading #writing #tarot #poetry #haiku #cozygames and I'm getting more into #opensource / #linux)

When I say flow art, I mean spinning props like #hulahoop #leviwand #puppyhammer #poi #staff #silkfans #firefans etc.

I love #languagelearning. I studied #German and #Spanish as a kid, took #Japanese in uni, and I'm currently studying #ASL #Cree #Tokipona #Spanish and #Chinese. I also dabble in #French and #Latin sometimes and I'm learning #Greggshorthand to write faster. Cree is my favourite language and Spanish is my second.

I've been cursed since childhood with that lovely trifecta of #heds #pots and #mcas. Healing slowly but surely.

Hope I get to meet even more cool people the algorithms would normally drown out on other social media sites. I love it here!

It's my birthday today, and I wrote this thing on my blog about how I experienced the last year: https://www.johannesjaeger.eu/blog/living-with-fatigue-and-a-society-that-does-not-care.

I really needed to get this out of my system.
Millions are missing, and nobody seems to care.
#MECFS #MCAS #LongCOVID

I have #MCAS and #MECFS since January 2024, triggered by an #RSV infection that should just have been a cold at my age. But it wasn't since I had #COVID in 2021...

I've been ill for
- more than a year, or
- more than 440 days.

Stop the spread.
Millions are missing worldwide.
#COVID is not over.

Da ich an chronischen Krankheiten leide, versuche ich (neben Medikamenten zur Stabilisierung dieser) auch:

Radikale Akzeptanz - des Verlustes meines bisherigen Lebens.

Radikale Akzeptanz kann als die Fähigkeit definiert werden, Situationen zu akzeptieren, die sich deiner Kontrolle entziehen, ohne sie zu bewerten, was wiederum das durch sie verursachte Leiden verringert.

Dadurch bin ich zumindest psychisch stabil. Und Lebensfreude trotz allem kein Fremdwort.

#postcovid #mecfs #mcas#pots

Ich habe immer wieder mal so Phasen, in denen es mir wirklich schwer fällt, bei mir zu bleiben und nicht in pure Angst zu verfallen, was meine Zukunft und Existenz auf diesem Planeten betrifft.

Eine schwere Erkrankung zu haben, für die es keine Heilung und wenig Behandlung gibt, ist da wirklich kein Pluspunkt.

Trotz allem kristallisiert sich zumindest immer mehr raus, was ich eigentlich gern in dieser Zukunft noch machen würde. Also ich hab schon Hoffnung. :)